Empower Through Health (ETH) is a healthcare, research, and education 501c3 organization operating in rural eastern Uganda. ETH runs a health center that provides general medical care for surrounding communities and delivers psychiatric and neurological services across Buyende District (population >400,000). ETH’s research focuses on reducing demand-side barriers to care and partnering with existing community structures to improve mental health outcomes and support recovery after mental health crises. ETH hosts the Global Health Experiential Fellowship (GHEF), a hands-on training program that pairs Ugandan and U.S. trainees on community-engaged research. ETH is also expanding its education mission by launching a primary school to strengthen long-term community wellbeing.
Targeted Condition: Autism Spectrum Disorder
School-Based Paraeducator Education for Engagement at Recess (SPEER)
The purpose of this study is to compare two implementation strategies for a social engagement intervention that supports autistic children and their non-autistic peers during recess. Remaking Recess has been shown to improve peer engagement for autistic students when implemented by paraeducators during recess. However, without supports, paraeducators face barriers to implementing the intervention well. This study compares paraeducators’ use of Remaking Recess when they receive coaching alone and when they receive coaching along with consultation from school-based teams.
Systematic redesign of an autism community implementation toolkit for schools
The aims of the current project are to: 1) Engage stakeholders to identify targets for ACT SMART redesign to optimize its fit for middle and high school providers who serve autistic adolescents; 2) Conduct prototyping and usability field testing of the redesigned ACT SMART and iteratively refine to ensure usability, feasibility, acceptability, and appropriateness for use in schools.
CARR: Covid-Association Risk and Resilience
The CARR study explores trajectories of mental health and social-emotional wellbeing among youth, including those with autism, ADHD, and/or anxiety. Online assessments of social-emotional features from both youth and caregiver perspective take place every 6 months over a 2-year period, with the goal of understanding mental health in the context of the Covid pandemic.
SPARK
SPARK is an autism research study and a growing community of autistic individuals, their families, and researchers with a goal to advance the understanding of autism. This study aims to improve the lives of people with autism by identifying the causes of autism and informing more effective therapies, treatments, services, and supports.
G2MH: Genes to Mental Health
This study is looking at individuals who carry a rare gene event and their biological family members, with the the goal of exploring the differences between individuals with one of these gene events and their biological family members.
TIGER: The Investigation of Genetic Exome Research
In the TIGER research study, we are learning more about individuals with genetic events associated with autism spectrum disorder (ASD), intellectual disability (ID), and/or developmental delay (DD) in order to better describe how different gene disruptions impact behavior in children and adults.
Preparing teachers and paraprofessionals for the successful inclusion of children with ASD (ASD PREP)
The purpose of this IES study is to identify what EBPs teachers and paraeducators use to more meaningfully include and retain autistic in general education settings; and the malleable individual and organizational characteristics that increase EBP use.
Autism Intervention Network on Behavioral Health (AIR-B)
The purpose of this multi-site study is to develop and evaluate a multi-phase implementation and sustainment strategy to support evidence-based practice use across different interventions for individuals with autism, settings, and ages.
*In partnership with UCLA, UC Davis, Rochester, Penn, Drexel, and Kansas
Autism Community Toolkit: Systems to Measure and Adopt Research-Based Treatments- Educational Redesign (ACT SMARTER)
The aims of the current project are to: 1) Engage stakeholders to identify targets for ACT SMART redesign to optimize its fit for middle and high school providers who serve autistic adolescents; 2) Conduct prototyping and usability field testing of the redesigned ACT SMART and iteratively refine to ensure usability, feasibility, acceptability, and appropriateness for use in schools.
